P is for personal and I was argue disability is a very personal thing and that it is one of the issues where other people believe there can have a big say of someone’s personal life. In the UK, personalisation of services and social care is seen as the way forward but I am not sure many people understand how personal personalisation needs to be.
I work with people who see supporting my life as their job but I feel they forget that it is indeed my life and I simply engage with them as gatekeepers to services and funding as opposed to rely on them for everything is the way they assume. People ask me about choices but they often talking about choices on their terms, ones they are prepared to offer me, rather than those that come with responsibilities in the real world.
There are many issues in disability matters which are personal in every sense of that meaning and therefore can never be resolved which can be frustrating but interesting!