As usual, I am using a controversial title to entice people to read my article as any journalist or blogger would do, but at this important time in my life, this is an important article to write and for many people, a hard one to read. This article also reflects my intellectual honesty after I have decided my full inclusion in society as an equal is a missed opportunity for myself.
No way do I regard myself as defective in terms of who I am and what I have achieved but my role in society is indeed that of a defective person, a term I am using to mean ‘the most vulnerable’, ‘the severely disabled’, ‘the profoundly disabled’, the retarded and so on.
The bottom line which those in disability politics refuse to accept is that impairment/disability is split into two groups. The first is those with acceptable impairments and can include anyone as this group is self-defined. This group is seen with pity but still regarded as humans, and people with political power. An alcoholic, drug addict, overweight person or someone slightly stressed can wear the disability crown as they want as the disability label is used like a drug itself.
Of course, there are people with acceptable impairments who have a real social disadvantage but it is getting hard to spot them.
Then we have defectives, that society truly sees as inferior beings. We do not need tests or assessments for anyone to debate our unwantedness as our defectiveness goes to our core like a stick of rock and our disability badge is burnt into our souls 24/7.
The powerful and abusive carers movement have taken family interdependency from individuals and replaced it with the carer/cared for social construction. This means many organisations, especially the NHS, assume defectives like myself need to be ‘looked’ after by our carers as unlike those with acceptable impairments, we lack full autonomy and so personhood. Too many times my intelligence has been undermined because I look defective.
Employment is an issue where the difference in treatment politically between those with acceptable impairments and defectives is most obvious. While everyone supports the idea of supporting people with acceptable impairments, there is a growing belief in most corners that defectives like myself should once again be automatically written off at birth on a criteria produce by a panel of Guardian journalists.
And this argument that as a defective I have no value in society shows that despite the improvements designed for people with acceptable impairments, which defectives have indeed coincidently benefitted from, the attitude towards people like myself has not changed deep down since Nazi Germany. I would go further and suggest that the strong Carer’s movement and Workshy movement, which really exists, means things are getting worse for defectives.
The workshy movement, who represent those who think having a minor and often everyday impairment, like stress, gives them the right to the disability crown with all the perks they see it has, without any downsides. Communist Labour has promised to delivery this afternoon tea image of disability, and it will clearly be paid for by taking money away from defectives, where mercy killings by ‘carers’ will be ‘understood’.
If you wanted to know how these moments of realisation of society’s understanding of equality, or its failure, were made, have made wonderous by the Hollywood Industry, here is one right now.
As a defective who broke the mould the day I was born, I have snapped because of the way I have been treated by the NHS in recent months. There is little point complaining to a system that does not respect my existence. It is time to focus on what I want, which is experiences of all kinds, and stop helping those who despite pretending, always see me as defective.
To expose the bigotry I face as someone society sees as defective, it may be time to play the villain so many people portray me us already.
Please contact me if you have any suggestions to cope in a hostile and sometimes lonely world for people who defy their labels.
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Having Pride (My Life Story) – http://www.balsy.me
Stevens’ Manifesto – https://www.simonstevens.com/manifesto
Understand Assistance – http://www.understand.tips
Understand Dysability – https://www.simonstevens.com/understanddysability
Understand Inclusion -https://www.simonstevens.com/understandinclusion
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